Tuesday, April 12, 2011

I wish my Dad had a Point To Communicate booklet.

Eight years ago, I created a booklet for my Dad who could not communicate due to Parkinson's and Lyme disease. He was still living at home. He had a home health nurse during the day but he was so locked up inside himself and unable to communicate. He had lost his voice and could not speak. The Parkinson's disease left him unable to write.
When I gave him the first draft of the booklet, he was so happy to have a means to communicate. He used it with me, our family, friends and his medical team. He was able to point to where he was hurting, ask for specific needs to be met like turn off the lights or I want to sleep now. He pointed to "I love you" and "Thank you" when I used the booklet with him.
My Dad has since passed away but left a very important job for me to do and that is to tell people about the Point To Communicate booklets, and especially the families, friends and medical professionals who need this tool.
My friend saw my booklets one day as I was about to leave for a business meeting and said, "I wish my Dad had a Point To Communicate booklet after he had a stroke. He was so frustrated not being able to tell us how he was feeling. He passed away and we were never able to communicate." Please note that my friend's Dad died before I had created the booklets.
Do you have a story to share or a comment about the Point To Communicate booklets? I would love to hear from you.
Thank you. Arlene

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